Posts Tagged ‘ulcerative colitis’

What To Do When You Feel Shortchanged By Your Illness

Monday, April 19th, 2010

A while ago I worked with a client I’ll call John, who had ulcerative colitis. John had learned the hard way that if he didn’t follow a very strict diet, he would have intestinal and other symptoms that were very severe. But when he adhered to that diet, he felt extremely deprived. Those feelings of deprivation would lead to cravings, which he would eventually give in to, and would again experience all those awful symptoms.

I think that one of the hardest things about having a chronic illness is dealing with feeling shortchanged and deprived. We can easily feel like that because of all the things we can no longer do – things like eating whatever we want, working as many hours as we want, traveling without worrying where the nearest bathroom is, or being the active and attentive partner, spouse, or parent that we used to be.

The first thing I tell clients who feel shortchanged or deprived because of any kind of limitation that is due to their illness is to fully acknowledge those feelings. We often try to tell ourselves that those limitations aren’t a big deal, or we try to discount our feelings by telling ourselves that many other people have limitations that are much harder to live with than ours are. But those strategies don’t work, because there is a part of us that knows we aren’t being honest with ourselves.

I have found, both from coaching others and dealing with my own illness and the feelings that come with it, that what does work is for us to tell ourselves we are sorry we feel shortchanged and deprived. And it’s very important when we say that to ourselves that we really mean it. Just imagine for a moment how unsupported and uncared for you would feel if a friend told you they were sorry because of how you felt, but you sensed that he didn’t mean it. So when you tell yourself you’re sorry, make sure you truly mean it.

After my clients tell themselves how sorry they are, I then give them the following challenge: Brainstorm to find alternatives for the things they can’t do because of their limitations, that give them the same feelings of enjoyment and fulfillment that the things they no longer can do used to give them. I encourage you to take on this challenge too. For example, if it’s difficult for you to travel, you can become internet pen pals with people in your favorite foreign country. Or if you can’t participate in the outdoor activities you formerly did with your children, you can learn how to play their favorite video or computer games with them. The list of possible alternative things to do is limited only by your imagination, and I bet you can find some that you enjoy more than you thought possible.

Getting back to John, I suggested that he find some special foods he really enjoyed that didn’t exacerbate his symptoms, and I also suggested that he do things like buy himself a CD he wanted every week he adhered to his diet, so that he wouldn’t feel deprived. He found these suggestions very helpful.

If you are feeling shortchanged or deprived because of any illness related limitations you have, I encourage you to first fully acknowledge them, then let that part of you that is feeling that way know how sorry you are, and finally, do some brainstorming to come up with enjoyable and satisfying alternatives for the things you’re no longer able to do.

A Special Kind of Love – Part 2

Thursday, October 15th, 2009

Back in August I wrote a post I titled A Special Kind of Love, in which I described the special ways my mother took care of me during those times when I was sick as a child, and how as an adult I eventually learned to take care of myself the same way. Today I want to tell you another story about a mother’s love for her child.

A while back I was coaching a woman – I’ll call her Wendy – who was struggling with ulcerative colitis. I wanted Wendy to see that she needed and deserved lots of understanding and compassion from herself. Wendy is married and has a very young son. Like most mothers, she would do anything for her son to help him be happy and healthy.

Knowing that, I asked Wendy to imagine that her son had grown up and was in college. I also asked her to imagine that he was struggling with ulcerative colitis. After she took a minute and did that, I asked her what she would say and do. She said that she would hug her son and tell him that she would always love him, that she would always be there for him, and that she would do whatever it took to help and support him so that he could live well.

Hopefully Wendy’s son will never develop ulcerative colitis. But since Wendy has it and is struggling with the symptoms and challenges of living with it, she needs all the understanding, compassion, and support she can get. From her answer to my hypothetical question, Wendy realized much more than she did before that she has lots of understanding and compassion to give. I strongly encouraged her to give them to herself, because she needs and deserves them. And if you have a serious chronic illness, I strongly encourage you to do the same for yourself. You deserve it!

How to always get the understanding and compassion you need

Monday, September 28th, 2009

Today I’m going to share one of the strategies I give my clients with Crohn’s disease and other chronic illnesses to help them have much better lives. I also use this strategy myself – a lot.

Those of us with a chronic illness often find ourselves needing understanding and compassion. Sometimes we can get them from spouses, friends, and others. But there are times when those people aren’t able to give them to us. What can we do then? Before I answer that question I’m going to tell you a true story about what not to do:

A few years ago I was a volunteer host for an online Crohn’s and colitis support chat room. One day a man came into the chat room who was clearly very upset. Frank (as I’ll call him) had missed several days from work due to a flare-up of his Crohn’s disease. When he returned to work, his boss, who knew of his condition, didn’t express any concern or compassion for Frank at all. Instead, he chastised Frank for missing all those days of work.

That was hard on Frank, and he spent a lot of time in the chat room telling the rest of us how hurt and angry he was because of his boss’s uncaring behavior. He then came up with the idea of leaving his colonoscopy pictures on his boss’s desk – both as an act of retaliation and to have him see the error of his ways. I tried to tell Frank that that wasn’t a good idea, but he wasn’t listening all that well.

Clearly what Frank needed most was understanding and compassion. However, from the way he described the situation, the chance that he could get any from his boss ranged from slim to none. Instead of trying to get it from his boss, and feeling hurt and angry when he didn’t, what Frank needed to do was give himself the understanding and compassion he needed. And the same is true for us when we find ourselves with the same needs, and with spouses, partners, friends, colleagues, or bosses who for whatever the reason aren’t able to meet them.

It is ultimately is up to each of us to meet those needs for ourselves. This may seem difficult or even unnatural to do, but it doesn’t have to. Thinking about how we would treat someone we loved and cared about who wasn’t feeling well, such as a close friend, a spouse, or a child, and then treating ourselves the same way can go a long way to meeting our need for understanding and compassion.

Chronic Illness and Depression

Friday, August 7th, 2009

I had an initial coaching session recently with a man who said he was a little depressed and wanted to be happier. Bruce, as I’ll call him, was 38 years old and he has had ulcerative colitis, a chronic and often severe inflammation of the colon, since he was 15. Given that he had been sick for 23 years, it wasn’t surprising to me that he was depressed.

However, Bruce had a better life than most of the people I work with. He had a supportive wife and two young children whom he loved, and he had a well paying job that he enjoyed a lot that he was able to do well in spite of his illness. I guessed that there were other factors besides his illness that were contributing to his depression, so I asked Bruce a few questions about different areas of his life, including his childhood. Without hesitation, but in a detached way, Bruce told me that his father was killed in an accident before he was born.

As he told me his story, I got a strong sense that a lot of Bruce’s depression came from his early childhood. It would sure be understandable if it did. Most families look forward to the birth of a baby, but Bruce’s mother was overwhelmed and grieving from the loss of her husband. Life must have been very hard for both of them.

I would have liked to help Bruce heal the depression he had because of his illness and his childhood, and possibly other factors as well. I think it’s very likely that his ulcerative colitis symptoms would have improved a lot with coaching. But Bruce decided not to hire me at this time. I hope that sooner rather than later he gets the help he needs so that he can have the happiness he wants.