First post!

Thursday, April 9th, 2009

Welcome to my Living Your Best Possible Life When You Have a Chronic Illness blog. Thank you for visiting.

My purpose is to share with you the strategies I’ve learned for living your best possible life when you have a chronic illness, and to – I hope – learn what strategies have worked well for you.

I’ve learned quite a lot in my own 12 year struggle with a chronic illness (Crohn’s disease), but I’ve learned even more about what works and what doesn’t in my six  years of coaching people on how to live well with their chronic illnesses.

I’m looking forward to sharing that knowledge with you, answering your questions, and getting your feedback and ideas.

4 Responses to “First post!”

  1. edwina says:

    HELLO,
    i am reading all your posts and enjoying them and am sorry to know you also have crohns.
    i hope its in remission.
    ive had the stuff since 1979, and was diagnoised when i was in my twenties .
    i have wondered if all the other health problems ive aquired since that time as been a result also of having crohns. …
    i so hope you wont have any ‘extra’ nasty surprises from it later down the road.
    but all in all, i just wanted to post that i am glad you started this blog,
    as ill be a regular, and will tell my friends to also visit.
    have a great month of may.:)

  2. Tom Robinson says:

    Hi Edwina,

    Thank you for your comment and for your caring.

    I was diagnosed with Crohn’s disease when I was in my late 40s. My heart goes out to those who get it in their twenties or earlier.

    Yes, it can be the cause of many nasty “surprises.” I’ve had some of them, but fortunately, except for an occasional mild symptom, my illness is now in remission.

    I’m glad you’re enjoying my posts. I hope you find them very helpful.

    Warmly,

    Tom

  3. eileen says:

    my grandaughter was just diagnosed with Crohn’s disease at age twelve years. We are learning about this disease and want to know how to help her deal with it. Any suggestions?

  4. Tom Robinson says:

    Eileen,

    I’m sorry your granddaughter has Crohn’s. I would encourage her to learn everything she can about it. Also, it may not have anything to do with her getting Crohn’s, but I’m convinced that getting a mouthful of mercury-amalgam fillings and having bands for braces put on teeth with fillings contributed to my getting Crohn’s.

    Finally, while encouraging your granddaughter to do everything she can to get well (and some people do), I would also encourage her to think about how she would live her life if she knew she would never get better. Doing that helps people with chronic illness live as fully as they can.

    I hope this helps.

    Tom Robinson

Leave a Reply